Lepers and
lovers in a dangerous time
AL-AMARAH, IRAQ -- This is a
story about an uncommon love flowering in an
unlikely place, in a time of sanctions and
war.
As the U.S.
Army advanced on Baghdad this spring, the
tanks and troops swept by a tiny nondescript
cement building that stands alone in Iraq's
southern desert. As the planes roared
overhead, Hadia and Toukham held each other
and hoped war wouldn't reach their home, the
only leper colony in the Middle East.
For 25 years,
the two have lived in the same building
together, forcibly segregated from the rest
of society. For Toukham, a lifelong resident
with no memory of the outside world, the
colony is the only existence he knows. Hadia
spent many of her first years here pining
for the husband and family she was forced to
leave when she contracted leprosy.
Over time, as they sat on the sunny porch
together and listened to the desert winds,
they became friends. They passed their days
chatting about times gone by, Hadia sitting
in a plastic chair, Toukham kneeling at her
feet.
One day in
1991, as the rest of the world was worried
about forcing the Iraqi army to leave
Kuwait, he reached out and stroked her hair.
A romance was born. "I still love it when he
plays with my hair," says Hadia, an
energetic woman in her mid-50s who giggles
at the memory.
The courtship developed slowly at first,
with Toukham occasionally working up the
courage to take her fingerless fists in his
leathery hands. As United Nations sanctions
after the 1991 war in the Persian Gulf
tightened their hold on this country, they
acknowledged their love for each other and
were soon spending almost all of their time
together.
Four years
ago, Toukham asked her to marry him. "Nobody
else took me, so I forced myself on her,"
chuckles Toukham, an impish 75-year-old with
a wispy beard. Then he gets serious.
"Life can be
lonely here."
Hadia, he
says, changed his life and erased the
feeling of isolation that he'd lived with
since he was moved here as a child. "I like
her voice, and I like the way she feels. I
like to cook for her too," he says softly.
Hadia grins and soaks up the praise.
The wedding was a simple affair, celebrated
in the presence of an imam and the other six
residents of the colony. They toasted the
newlyweds with juice delivered specially for
the ceremony.
"As soon as
we were married, I grabbed him and held him
and started kissing him all over," Hadia
said proudly. "I was so happy."
"Me too,"
Toukham deadpanned in a comically fatigued
voice that won laughter from Hadia and the
other residents.
They now
share a three-square-metre room with two
single beds and a tiny oven inside. It's the
only space they have for their private life.
Ten
kilometres away from the nearest city of al-Amara,
the colony is a desolate place. The home
sits near a dry riverbed with no other
structures in sight. Even the sparse
vegetation has been cleared from the area,
which was used for military exercises by the
Iraqi army. There's no electricity, and
water and food are delivered by truck only
every few days.
All eight
residents have advanced cases of leprosy,
having had limited access to medicines
developed elsewhere while the country was in
the grip of UN sanctions during the 1990s.
Most of the residents are missing some or
all of the digits on their hands, most have
lost their eyesight and none have the
strength to stand and meet rare visitors,
though they're clearly delighted to have
guests.
Hadia and Toukham say they could hear the
warplanes overhead during the fighting
earlier this year, and were frightened that
the war would cut off their uncertain food
supply. The nurses, though, made their way
to the home even while the fiercest battle
of the war was being waged in nearby
Nasiriyah.
The fighting,
Hadia said, was necessary because it rid
Iraq of Saddam Hussein. She and Toukham are
both Shia Muslims, a group persecuted under
Baath Party rule.
"I'm happy
now that he's arrested," she said, a frown
crossing her face for the first time in the
entire conversation. "He was guilty of so
many things."
Life has
taken a small turn for the better since the
end of the war, as Western aid workers have
begun visiting the colony and are now in the
process of giving the home a much-needed
upgrade. In mid-winter, though, there are
still no heaters, and there's a shortage of
blankets and warm clothing.
Though Toukham is 20 years older and has had
leprosy much longer, its ravages are more
apparent on Hadia. Her high-cheek-boned face
is dominated by eyes that seem to be pushing
out of their sockets. She lost her eyelids
to the disease, giving her an unblinking
stare: red lines streaking from blue irises.
Toukham is
also blind -- his eye sockets are empty and
shrunken -- but the nursing staff who
occasionally visits the colony say he has
surprising strength and spends much of his
days taking care of his wife.
"He cooks for
her, cleans her clothes and bathes her,"
nurse Mohammed Jirinati said. "He lives his
life for her."
The couple
were scared last year when Toukham caught a
fever, Mr. Jirinati said. He remembers well
how desperately frightened Hadia was when
she thought Toukham might die. "She kept
saying how she couldn't live without him."
Hadia doesn't
like to talk about that time now, preferring
instead to focus on how lucky they are to
have rescued each other from loneliness.
"Living here is much better now that I've
met him," she said. "It's not lonely any
more."
The Globe
and Mail; Wednesday, December 24, 2003
“Lepers
and lovers in a dangerous time” won the 2003
National Newspaper Award for best short
feature writing.
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